Following from the success of the Steve Harper Charity game in which we sponsored the trophy on the day, we were presented with a signed Newcastle United shirt from the NUFC Foundation. After some thought we felt this shirt could go to further use continuing the work done by those benefiting from the charity game as we have decided to donate the shirt.
Karate Club, Shikkari Karate Kai (see http://www.shikkarikaratekai.co.uk/ ) are raising funds for the Fraja Ellie appeal (see https://www.facebook.com/FrajaEllieAppeal/info ). We presented the club with the shirt who in turn are auctioning the shirt to raise funds for the appeal.
Fraja is 5 years old, an amazingly happy, funny and very loving little girl. She has been diagnosed with a very aggressive and rare cancer called Neuroblastoma with MYCN amplification which places her in the very high risk category. Fraja’s Neuroblastoma is even rarer than the usual form as there are only 3% of children with her type. Even with the multi-modality therapy that she is currently receiving, there is a relatively high chance that her cancer could relapse, should this happen there is generally a very poor long-term prognosis.
Sadly, around 80% of children with Neuroblastoma will relapse, and there is currently no UK relapse protocol. However, there are options available abroad; these treatments could cost in excess of £500,000. They need to be able to send Fraja at a moment’s notice should this happen.
Currently in the UK all children are on a blind trial to whether they receive immunotherapy with an antibody on its own or with an extra drug to increase chances. If Fraja is not picked by the random computer she does not get this extra chance. So we will need to go abroad for it as it has been proven it could raise her chances by 20%. Everyone is working to raise funds to give her this treatment.
